6th Annual Virtual Advocacy & Awareness Summit
Apr
6
9:00 AM09:00

6th Annual Virtual Advocacy & Awareness Summit

Online, FREE event - How to Advocate, Working with the ideal team.

You’re invited to join us LIVE on Facebook Thursday 9:00 am pacific to 2:00 pm pacific.

Interviews with caregivers, organizations, adult with BWS and parents of children with BWS.

OPEN CALL: Speakers wanted. Come and share your story. Message Honey Tapia for more information. Speaker line up coming soon!

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Alex's Million Miles - Alex's Lemonade Stand Fundraiser
Sep
1
to Sep 30

Alex's Million Miles - Alex's Lemonade Stand Fundraiser

Alex's Million Mile 2018

Run, walk, and cycle this September during Childhood Cancer Awareness Month!

Saturday, September 1, 2018 to
Sunday, September 30, 2018

Click here to Register, Support, Donate, or More Info

Turn awareness into action, by joining Alex’s Million Mile, the largest childhood cancer awareness challenge that funds researchers so they can find better treatments and more cures for kids battling cancer.

Whether you are a casual walker or jogger, an avid cyclist or marathoner, YOU can make a difference in the lives of children fighting cancer. Our goal is to collectively walk, run or ride a million miles and raise $1 million.

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BWS Family Conference 2018 - Miami, Florida, USA
Jul
20
to Jul 22

BWS Family Conference 2018 - Miami, Florida, USA

BWS Family Conference 2018
Hosted by: Nicklaus Children's Hospital
Supported by: Beckwith-Wiedemann Children's Foundation International (BWCFI)

When: July 20 - 22, 2018
Where: Nicklaus Children's Hospital - Miami, Florida

The great thing about this conference is the clinics with multiple specialist are included in registration. We also have lots of get togethers for parents to mingle.

Information & Registration:  fill out and return packet

EARLY BIRD Registration - $75 per person attending the conference/daycare, eating meals.  April 1, 2018 or later, registration is $100 per person attending the conference/daycare, eating meals.  More Info

Cost of the Conference Includes: all healthcare professional's presentations 7/21/18,   pre-registered clinic evaluation on either 7/20/18 or 7/21/18, childcare 7/21/18, and morning and afternoon refreshment breaks, boxed lunch and dinner 7/21./18,  More Info

Clinic Evaluations:  individual clinic evaluations are included and conducted to meet personally with our plastic surgeons, speech therapist, orthodontist and/or dentist, and genetics.  If you have already had a tongue reduction (with Dr. Perlyn or anyone else) then you will be seen Friday, 7/20/18.  If you have NOT had a tongue reduction, you will be seen on Sunday, 7/22/18.  

Payments:  PayPal is set up for payments. If you need to make payments rather than all at once that is fine with me just please make a note in the comment section on paypal so it is known who the payment is for.

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The First Annual BWS Awareness Summit
Apr
6
6:00 AM06:00

The First Annual BWS Awareness Summit

A FREE Online event for Advocacy, Awareness, Collaboration, and Support for your child's medical diagnosis.

Video interviews will be released through out the day starting at 6:00 am PDT on the BWS Awareness Day Facebook page

To be sure you catch all the interviews or to watch at your own convenience, register for the event links here.

Line Up: Lana Ride, Alisha Davlin, Kristen Burr, Honey-Marie Tapia, Dr. Chad Perlyn 

Info about: Beckwith-Wiedemann Children's Foundation International, United HealthCare Children's Foundation, and more!

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Virtual Awareness Day: "Together We Can"
Apr
6
12:01 AM00:01

Virtual Awareness Day: "Together We Can"

[SIGN UP] now to show your support here.

Join us on April 6th by changing your profile photo or sharing your photo with one of the photo frames. (Coming Soon!)

"Together We Can" Tag a Pediatric Medical Provider

#BWSAD2018 #togetherwecan

Post your photo on social media and ask others to join in!  Photo frame will be available.

Help us ramp up to make a big effect by making a pledge to share a key message inviting your friends to participate in "Together We Can, Tag a Pedatric Provider?" 

 

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BWS Awareness Day - Local Events around the world
Apr
6
12:00 AM00:00

BWS Awareness Day - Local Events around the world

TOGETHER WE CAN.  TOGETHER WE WILL

Register your event or items for sale.

Join families around the world on Friday, April 6th 2018 by creating or participating in your own local activities. 

  • Plan ahead for how you will participate on April 6th
    • Nothing too big or too small! 
    • Get your family, friends, co-workers, pre-school, school, childcare, physical therapy/speech therapy offices, doctors office, children's hospital involved! 
    • Get your social media pledge in and ask your supporters to as well.  (TIP: Individual messages are well received, even after a post)

Sign up for emails to keep up with what's new, as well as get reminders - Send us your email!  

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